Research WITH children with visual impairments : Analysing children's roles and adult positioning in the participatory design of multisensory educational tools
DOI:
https://doi.org/10.5077/journals/rihv.2026.e2560Keywords:
Participatory research, Participatory design, Children with visual impairments, Multisensory educationnal tools, EmotionsAbstract
This article analyses a participatory design process conducted with visually impaired children to develop a multisensory educational tool about emotions. It examines the roles children assumed throughout the design process, the methods used to elicit their perspectives, and the transformations of the tool during the workshops. The findings show that children successively occupied different participatory positions, ranging from users to informants depending on the project stage. Their contributions led to the abandonment of some initial design assumptions, the transformation of several activities, and changes in the role of others within the final version of the tool. The study also highlights that the quality of participatory design depends on appropriate material, methodological, and relational conditions, as well as on adult positioning. Adults' openness to children's proposals emerged as a key condition for meaningful co-construction.
References
Barnes, C. (2003). What a difference a decade makes: Reflections on doing "emancipatory" disability research. Disability & Society, 18(1), 3–17. https://doi.org/10.1080/713662197
Benz, C., Scott-Jeffs, W., McKercher, K. A., Welsh, M., Norman, R., Hendrie, D., Locantro, M., & Robinson, S. (2024). Community-based participatory research through co-design: Supporting collaboration from all sides of disability. Research Involvement and Engagement, 10(1), 47. https://doi.org/10.1186/s40900-024-00573-3
Caliman, L., Cesar, J. M., Pianca, V. B. R., Gonçalves, L. G., Simões, A. A. C., & Fernandes, A. N. (2018). O cultivo atencional como exercício de participação: Oficinar COM crianças na saúde mental. Ayvu: Revista de Psicologia, 5(1). https://periodicos.uff.br/ayvu/article/view/27401
Camponovo, S., Monnet, N., Moody, Z., & Darbellay, F. (2023). Research with children from a transdisciplinary perspective: Coproduction of knowledge by walking. Children's Geographies, 21(1), 163–176. https://doi.org/10.1080/14733285.2021.2017405
Charlton, J. I. (1998). Nothing about us without us: Disability oppression and empowerment. University of California Press.
Chennaz, L. (2025). Évaluation des compétences émotionnelles chez les enfants avec une déficience visuelle et étude d'un programme d'entraînement multisensoriel sur les émotions [Thèse de doctorat, Université de Genève]. Archive ouverte UNIGE. https://doi.org/10.13097/archive-ouverte/unige:186389
Druin, A. (2002). The role of children in the design of new technology. Behaviour & Information Technology, 21(1), 1–25. https://doi.org/10.1080/01449290110108659
Eckhoff, A. (2019). Participation takes many forms: Exploring the frameworks surrounding children's engagement in participatory research. In A. Eckhoff (Ed.), Participatory research with young children (pp. 3–19). Springer. https://doi.org/10.1007/978-3-319-95408-0_1
Fernandes, N., & Guedes Caputo, S. (2021). Quem tem medo das imagens das crianças na pesquisa? Contributos para a utilização de imagens na pesquisa com crianças. Sociedad e Infancias, 5, 51–63.
Frauenberger, C., Good, J., Keay-Bright, W., & Pain, H. (2011). Designing technology for children with special needs: Bridging perspectives through participatory design. CoDesign, 7(1), 1–28. https://doi.org/10.1080/15710882.2011.587013
Goodley, D. (2017). Disability studies: An interdisciplinary introduction (2nd ed.). Sage.
Hart, R. A. (1992). Children's participation: From tokenism to citizenship. UNICEF International Child Development Centre.
Iversen, O. S., Smith, R. C., & Dindler, C. (2017). Child as protagonist: Expanding the role of children in participatory design. In Proceedings of the 2017 Conference on Interaction Design and Children (pp. 27–37). Association for Computing Machinery. https://doi.org/10.1145/3078072.3079725
James, A., & Prout, A. (2015). Re-presenting childhood: Time and transition in the study of childhood. In A. James & A. Prout (Eds.), Constructing and reconstructing childhood (3rd ed., pp. 202–219). Routledge.
Kellett, M. (2005). Children as active researchers: A new research paradigm for the 21st century? ESRC.
Lozanovska, M., & Xu, L. (2013). Children and university architecture students working together: A pedagogical model of children's participation in architectural design. CoDesign, 9(4), 209–229. https://doi.org/10.1080/15710882.2012.693187
Mason, J., & Danby, S. (2011). Children as experts in their lives: Child inclusive research. Child Indicators Research, 4(2), 185–189. https://doi.org/10.1007/s12187-011-9108-4
Moraes, M. (2015). ChercherAVEC: Politique ontologique et handicap visuel. In M. Moraes & V. Kastrup (Eds.), Exercices de voir et non voir: Art et rechercheAVEC des personnes handicapées visuelles (pp. 31–55). Les Doigts Qui Rêvent.
Moraes, M., & Kastrup, V. (Eds.). (2015). Exercices de voir et non voir: Art et rechercheAVEC des personnes handicapées visuelles. Les Doigts Qui Rêvent.
Oliver, M. (1990). The politics of disablement. Macmillan.
Oliver, M. (2013). The social model of disability: Thirty years on. Disability & Society, 28(7), 1024–1026. https://doi.org/10.1080/09687599.2013.818773
Organisation des Nations Unies. (1989). Convention relative aux droits de l'enfant. https://www.ohchr.org/fr/instruments-mechanisms/instruments/convention-rights-child
Pigeon, C., Galiano, A. R., Afonso-Jaco, A., Valente, D., Uzan, G., Prestini, M., & Baltenneck, N. (2025). A participatory research to design a survey providing a portrait of the life of people with visual impairments. Disability & Society, 40(2), 300–316. https://doi.org/10.1080/09687599.2023.2287413
Rong, A., & Hansopaheluwakan-Edward, N. (2025). Uncovering facilitators and constraints in co-design with visually impaired children: A sociomateriality perspective. The Design Journal, 28(4), 742–760. https://doi.org/10.1080/14606925.2025.2477929
Simonsen, J., & Robertson, T. (Eds.). (2012). Routledge international handbook of participatory design. Routledge.
Sirota, R. (2006). Éléments pour une sociologie de l'enfance. Presses Universitaires de Rennes.
Valente, D., Bara, F., & Gentaz, E. (2018). Un guide pour concevoir des livres multisensoriels accessibles à tous avec la méthode de design participatif. Guide du laboratoire du développement sensori-Moteur, affectif et social (SMAS), Université de Genève.
Valente, D., Bara, F., & Gentaz, E. (2024). Recherche collaborative et design participatif pour la création d'un livre multisensoriel avec les acteurs culturels et les enfants avec un handicap visuel. ANAE. Approche neuropsychologique des apprentissages chez l'enfant, 187, 635–644.
Valente, D., Chennaz, L., Chabaud, C., Malet, C., & Gentaz, E. (2022). Co-conception d'un entraînement multisensoriel destiné à développer les compétences émotionnelles chez les enfants en situation de handicap visuel : Apports de la méthodologie de design participatif impliquant les professionnels de la déficience visuelle. ANAE. Approche neuropsychologique des apprentissages chez l'enfant, 178, 405–414.
Valente, D., Chennaz, L., & Gentaz, E. (2025). Développer les compétences émotionnelles des enfants en situation de handicap visuel : Co-conception et évaluation du programme multisensoriel innovant Emoti'Sens. Revue interdisciplinaire sur le handicap visuel, 2. https://doi.org/10.5077/journals/rihv.2025.e1884
Downloads
Published
Section
License
Copyright (c) 2026 Dannyelle Valente, Virginia Kastrup

This work is licensed under a Creative Commons Attribution 4.0 International License.

